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Ehlers-Danlos Syndrome (EDS)

Understanding Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome (EDS) is a group of inherited disorders that affect the connective tissues—primarily the skin, joints, and blood vessel walls. Connective tissue provides strength and elasticity to the underlying structures in your body. With EDS you may experience joint hypermobility, skin that can be easily bruised and scarred, and a variety of other symptoms that can impact your daily life. 

Types of EDS

EDS encompasses a variety of subtypes, each with its own specific set of features. The most common types include: 

  • Hypermobile EDS (hEDS): Characterized by loose, unstable joints and chronic pain. 
  • Classical EDS (cEDS): Known for highly elastic, velvety skin that bruises and scars easily. 
  • Vascular EDS (vEDS): The most severe form, affecting blood vessel walls, leading to a higher risk of rupture. 

Symptoms of EDS

The symptoms of EDS can vary widely from person to person and depend on the specific subtype. Common symptoms include: 

  • Joint hypermobility 
  • Skin hyperextensibility 
  • Fragile skin that bruises easily 
  • Chronic pain 
  • Frequent joint dislocations  
  • Poor wound healing  
  • Digestive disorders 
  • Cardiovascular complications  

Why Choose Forum Health? 

Holistic Approach: We look at the whole person, considering all factors that might be affecting your health. 

Expert Team: Our team includes specialists in genetics, physical therapy, nutrition, and cardiovascular care, all collaborating to provide comprehensive care. 

Personalized Care: We develop treatment plans tailored specifically to your needs and lifestyle. 

Ongoing Support: Continuous monitoring and adjustment of your treatment plan to ensure optimal outcomes. 

Forum Health's Functional Approach to EDS Treatment

At Forum Health, we take a functional and integrative approach to treating Ehlers-Danlos Syndrome, focusing on the root causes of symptoms rather than just managing them. Our goal is to improve overall health and quality of life through personalized, holistic care. 

Comprehensive Evaluation

Our process begins with a thorough evaluation to understand your unique health profile.

Detailed Medical History

We take the time to understand your personal and family medical history.

Physical Examination

A comprehensive physical exam to assess the extent of your symptoms.

Genetic Testing

To identify specific genetic mutations associated with EDS. 

Diagnostic Tests

Additional tests as needed, including skin biopsy, imaging, and cardiovascular evaluations.

Personalized Treatment Plans

Our providers will tailor a treatment plan to your unique needs.  

  

Our team is here to provide the comprehensive, personalized care you need to manage this complex condition effectively.

FAQs

Currently, there is no cure for EDS. Treatment focuses on managing symptoms, improving quality of life, and preventing complications through a personalized and multidisciplinary approach. 

EDS is typically inherited in an autosomal dominant or autosomal recessive pattern, depending on the type. This means it can be passed from one or both parents to their children through specific genetic mutations. 

Yes, EDS can affect various systems including the gastrointestinal, cardiovascular, and musculoskeletal systems.  

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